Lately it has been a roller coaster within myself about Looly (Kate), our youngest daughter who has Down Syndrome. As her parent I worry if I'm doing enough. She still doesn't feed herself with a spoon or fork. She is beginning to listen when we say no. She has learned how to undress herself down to her onesie, even if we need her dressed! If it is just a matter of when, I can handle that, but if it's a matter of "we should have", that's my worry. I reflect on how much I wanted to hold onto my pregnancy with her. Making many deals with God along the way. From very early in my pregnancy I had whispers that this child may have Down Syndrome. I had started writing a story, in the story was a big family who had a child with Downs Syndrome and the Mom was pregnant and wondering if the child she was carrying would have Down Syndrome. Now why would I write this??? Why was this story so important to write? Now I know why. I didn't get any genetic tes