Our Special Gift is more than a Child with Down Syndrome

As I sit in the quiet of my house this morning, I am thankful. Our life is about to get very busy with one young adult commuting to College, one child to pre-school and two young teens to be homeschooled with outside classes. It is going to be very busy and for the children, exciting and fulfilling. I'm trying to take on an attitude of success and accomplishing many things. Part of me wants to just skip to Thanksgiving break! You can't wish your life away. It is all going too fast.

The first child up in the morning is our Looly (Kate). She wakes up and then begins the "talking" and raspberry's. I like to hear her say Mum!!! The joy and hugs in the morning are so loving. She wants her sippy cup of milk and after a piece of toast while watching her favorite show the Wiggles. She will be starting a new year at pre-school next week and I can't wait to see her blossom even more than she has.

Each girl wakes up all sleepy eyed and hair disheveled and slowly walk into the livingroom to get hugs and love from Looly. She is the key person. Having a bad day, pick up Looly and hug her. Need some laughs, sit with Looly and play. Need exercise, take her outside and watch her explore! She keeps this family in joy.

She is now attending Sunday Mass. She is doing okay. Consistency will make it better. She isn't too happy with the organ blasts! I have to stay in the back with her, away from our family in the pew. But it is working. The timing is never ours but His. For so so long I wanted to bring her to Church but needed the feeding of Mass. The words of the homily. The peace that surrounded us. Then came the day I was ready to bring her and introduce her to my Catholic family. I am surrounded even more by peace because I was prepared in my soul. I realize He was calling her to the next stage of her life and the rest of her family too!

Our children are our sunshine. Every single one of them is unique and everyone of them has a big heart. God has blessed us abundantly.

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Don't Judge a Special Needs Family

Have you ever been misunderstood? Have you ever tried to do the right thing and have a whole bunch of wicked come hurling at you? What did you do? Did you start to endlessly explain your motives so it could be twisted by the few people that dislike you? Or did you stay silent? Staying silent is not my strong point, thus the blog.;) When I became pregnant with Looly (Kate), I noticed some big changes within myself. I had to fight to keep her alive because of a difficult pregnancy. Then at the end of my pregnancy I had to fight to keep us both alive. Then we were told Looly had Down Syndrome. At that time, we were grateful to God that she was alive and later we were thanking God that her heart was healthy and there was no neurological damage. She just has Down Syndrome. Just Down Syndrome. Say those words...just Down Syndrome. That is what I do, I simplify difficult things, then reflect and think I'm crazy. I was connected to this child at conception. I begged God to let me car...

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Aborting Down Syndrome Babies

I read this article this morning. As I read the comments from parents that said they would abort their baby if they found out it was going to have Down Syndrome, it occurred to me what a different conversation there would be if they didn't know they were going to have a baby with Down Syndrome. These people would learn that they were given a gift. The comment "I would have a very hard time dealing with a retarded child. Retardation is relative, it could be so negligible that the child is normal, or so severe that the child has nothing… All of the sharing things you want to do, the things you want to share with a child – that, to me, is the essence of being a father. There would be a big void that I would feel. I would feel grief, not having what I consider a normal family." Let's talk about this statement. If you had a "retarded" child, the first thing you would do, is stop using that word. You have a child that has Down Syndrome. This is not who t...

Being Up With Down Syndrome

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