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Don't Judge a Special Needs Family





Have you ever been misunderstood? Have you ever tried to do the right thing and have a whole bunch of wicked come hurling at you? What did you do? Did you start to endlessly explain your motives so it could be twisted by the few people that dislike you? Or did you stay silent?

Staying silent is not my strong point, thus the blog.;) When I became pregnant with Looly (Kate), I noticed some big changes within myself. I had to fight to keep her alive because of a difficult pregnancy. Then at the end of my pregnancy I had to fight to keep us both alive. Then we were told Looly had Down Syndrome. At that time, we were grateful to God that she was alive and later we were thanking God that her heart was healthy and there was no neurological damage. She just has Down Syndrome. Just Down Syndrome. Say those words...just Down Syndrome. That is what I do, I simplify difficult things, then reflect and think I'm crazy. I was connected to this child at conception. I begged God to let me carry this pregnancy.  B e g g e d! I needed this child and if I would have lost her, I can't even express. The diagnoses is Down Syndrome. Our hearts are forever grateful she came into our lives.

We went through a couple years of health scares. A couple years of in home therapies and now we have a 3 year old that is healthy, happy and oh so so stubborn. In the process of this life, I'm weary! I just don't have the fight like I used to. When I need to fight a ridiculous argument, I will walk away first or stay quiet. Yep, I changed. Now, I can debate, but the fight over nonsense has left me.

I don't have time for drama. My real life has drama. We have a special needs child. She isn't talking much, still in diapers and we have seen her get pneumonia 12 hours after a cold started. Our priorities are different. I really do try to live by "Love is Kind". Don't we all need kindness? I'm not a victim, I'm 
tired! We trust in God. We trust in God to lead us through whatever comes our way. There are stresses and if it wasn't for some key people in my life, (you know who you are) I would be crazier than I am. God gives me strength. I ask our Blessed Mother to pray for us. My family gives me strength, BJ and the kids inspire me to be a better wife and mother. My husband BJ is my rock. Statistics show a number of times through our marriage that our marriage was doomed! Every road block we cross with God leading us. Together in our sacrament of marriage.


There are many people that should be thanked in our lives. It can't be easy not knowing how to walk with us through our lives. My sisters know this first hand! Along with my family, I have some friends that are there for me through it all. Praying, encouraging and helping to understand.










My top focus is Lent and serving the Holy Trinity and our Blessed Mother. Lent always starts earlier and earlier...




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