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Kate's Best Interest

Today was a hard day for Kate.  I know what she has become by great therapies.  I know there are great therapies in her future!  I also know that we, her family, are her advocates.  We fight for what is best for her.  If you have children, you know that a parent fighting for their child, outweighs pretty much anything. When going through the process of getting the best school for her, there is a lot of nonsense and irrelevant paperwork.  Therapists feel they can discuss Kate as if she doesn't understand what they are saying, during this process.  We found out a long time ago that she understands everything we say.  Filling out forms that have absolutely no meaning to her care, upsets me to no end.  Out of 300 questions, I answered all but 12, with a zero.  These are irrelevant questions for her.  These questions are for children with a functional disability?  Not for a child who is nonverbal and struggling with a lot. Yet the experts insist they know better than we do.  The problem is that we her family, know this child better than anyone on this earth.  The school BJ and I think is the best fit is being pushed aside, by the experts. Trying to make their school the main school.  I get it.  In the end, we will see which wins.  If they truly have Kate's best interest at heart.

 I read a fantastic article about "Charles de Gaulle, he had a daughter Anne that had Down Syndrome.  He and his family took care of her at a time when these children were instutionalized.  "As de Gaulle confided to a priest at the beginning of his lonely crusade in 1940 to save France’s honor, “for me, this child is a grace, she is my joy, she helps me to look beyond all the failures and honors, and always to look higher.”"

So this battle about where she attends school will be a vague memory soon.  God has this.  He always does!  Praying for peace and good guidance.










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