Skip to main content

Kate's Best Interest

Today was a hard day for Kate.  I know what she has become by great therapies.  I know there are great therapies in her future!  I also know that we, her family, are her advocates.  We fight for what is best for her.  If you have children, you know that a parent fighting for their child, outweighs pretty much anything. When going through the process of getting the best school for her, there is a lot of nonsense and irrelevant paperwork.  Therapists feel they can discuss Kate as if she doesn't understand what they are saying, during this process.  We found out a long time ago that she understands everything we say.  Filling out forms that have absolutely no meaning to her care, upsets me to no end.  Out of 300 questions, I answered all but 12, with a zero.  These are irrelevant questions for her.  These questions are for children with a functional disability?  Not for a child who is nonverbal and struggling with a lot. Yet the experts insist they know better than we do.  The problem is that we her family, know this child better than anyone on this earth.  The school BJ and I think is the best fit is being pushed aside, by the experts. Trying to make their school the main school.  I get it.  In the end, we will see which wins.  If they truly have Kate's best interest at heart.

 I read a fantastic article about "Charles de Gaulle, he had a daughter Anne that had Down Syndrome.  He and his family took care of her at a time when these children were instutionalized.  "As de Gaulle confided to a priest at the beginning of his lonely crusade in 1940 to save France’s honor, “for me, this child is a grace, she is my joy, she helps me to look beyond all the failures and honors, and always to look higher.”"

So this battle about where she attends school will be a vague memory soon.  God has this.  He always does!  Praying for peace and good guidance.










Comments

Post a Comment

Popular posts from this blog

Thank You!

BJ and I woke up this morning to Kate!  She was "talking" in her room.  I love the little snippets.  She likes to say "bad girl" and then laugh!  Then started calling me, Mum Mum Mum.  Cracks us up.  We love going in her room to get her.  So full of joy.  Always ready for a new day!  This Saturday morning she brought her blocks to BJ to play.  This is our life.  Our children.  We would do anything for them.  All our children are gifts from God.  We never know how the road we travel will turn out.  We do the best we can to share God and love.  The most important part of life is kindness.  We teach kindness and forgiveness.  Our children practice this daily.  We are hoping they don't have the obstacles we have been dealt, but we all know they will have others. My husband BJ is my best friend.  Everything we stand for or against, we stand together.  BJ is a fantastic husband and a s...
Post a Comment
Read more

Looly Goes to School

Looly started school!  She is going to a Special Needs Preschool to get speech therapy, occupational  therapy and physical therapy.  She was leary after the first day but once she saw her ole favorite Physical Therapist, Matt, the game was on! Matt is a young man that is married with two daughters.  He loves Kate.  He calls her turkey and she squeals with happiness.  When we first saw him after a year break, she actually kissed his cheek.  Matt has all of Kate's respect.  Matt challenges and pushes her to do better.  Sometimes there is even tears, but she will work hard for him.  By the next week he will see improvement.  It makes us all laugh at her stubborn determination to "show Matt!" This past week we were made aware through the speech therapist that they rang a bell directly behind Looly and she didn't flinch or turn to look.  So we made an appointment with a hearing specialist.  I do not believe she is 100% deaf...
Post a Comment
Read more

Finding Peace with Charlie Kirk

It sure has been a rough time this year.  I really thought this year was going to be spectacular and finally peace among us.  How naive I still am.  Or is it the Pollyanna in me. Seeing Charlie Kirk get assassinated shook me and many others to the core.  I loved Charlie and what he stood for and yet!  I am so surprised at exactly how many people he touched.  Behind the scenes he was such a testament of who we should be.  He was genuinely GOOD!  How many times from thousands of friends did they say how he checked in on them and the encouragement he shared with them.   Now Revivals are breaking out and the younger generation is praising God in millions.  Does it make you think about yourself and how you make a difference in people’s lives?  Do you realize that your kindness and friendship is so much more powerful than you think?   When we want to mourn and hide away, we are being called to action.  Action with Praise and Glo...
Post a Comment
Read more