Being Up With Down Syndrome

BJ and I woke up this morning to Kate!  She was "talking" in her room.  I love the little snippets.  She likes to say "bad girl" and then laugh!  Then started calling me, Mum Mum Mum.  Cracks us up.  We love going in her room to get her.  So full of joy.  Always ready for a new day!  This Saturday morning she brought her blocks to BJ to play.  This is our life.  Our children.  We would do anything for them.  All our children are gifts from God.  We never know how the road we travel will turn out.  We do the best we can to share God and love.  The most important part of life is kindness.  We teach kindness and forgiveness.  Our children practice this daily.  We are hoping they don't have the obstacles we have been dealt, but we all know they will have others. My husband BJ is my best friend.  Everything we stand for or against, we stand together.  BJ is a fantastic husband and a s...

Watching Kate. Watching her discover puzzles! When she gets a piece in the right section, but now needs it to fit. Isn't that life? How many times we have gotten the piece in the right section, but will it fit into our children's life or the families? Such a simple task, it seems, yet more complicated than we thought. Kate is five years old, her disabilities delay her to about two. She is saying, maybe eight words. Can you imagine being in her world? Unable to communicate her needs. Therapies have been working on this for years. Now with a diagnosis of Autism, it is all a great big mystery. It is also a great big heartache. Today is World Down Syndrome Day. Today and lately, I'm in mourning. Kate does have Down Syndrome and THAT I could more than handle. The recent diagnosis of Autism is  killing me. For years I couldn't understand all the disconnects. Why we weren't moving forward. I'm completely heartbroken. Yes, I have to accept this. My fight left me. I...