Skip to main content

Kate's Diagnosis Autism/Down Syndrome







In my last blog I said we are dealing with more than Down Syndrome, we are dealing with brain injury from a critical birth.  Well I stick to that but now the official diagnosis is Autism/Down Syndrome.

So many times I wonder what God was thinking when he gave us the gift of Kate.  I never thought I could do this job.  God thinks differently.  He thinks that we all are capable and loving enough to give Kate a loving nurturing upbringing.  It is a privilege loving and knowing Kate.

In society today we have come a long way.  Special therapies, schools and activities.  Thank God we no longer put children in institutions!  We nurture and love our special needs children.  In our family it has taught all of us so much.  All of our kids love Kate beyond words.  Our son Beau walks in the house and goes directly to Kate for affection and teasing giggles.  All our daughters are little mom's to her needs.  Each one plays a major part in her life.  Kate loves each one differently and wholeheartedly.  Now Daddy is spectacular!  He hugs and kisses her and she feels his scruffy beard and laughs.  Lots of interaction in the family.  It changed each one of us.  Selfish is not in our vocabulary.  Everyone gets breaks from the constant caring, to reenergize.  That is healthy.  But I notice when this is happening, a door will open because that sister needs some Kate hugs.

Before Kate, I would look at a special needs child and want to help that family, thinking it must be awful.  Hard, disappointing.  Well, it's not.  It is love.  Kate wakes up and spreads love all day.  Even in mischief, we find some humor.  Within the realm of our family, there is great satisfaction in just being here for her.

Our hopes are a special school for kindergarten in the fall.  For Kate to start talking and thriving through the many therapies they offer.  She will talk, feed herself and become potty trained in the time God says and not a minute sooner.  I hope I have given some insight for those that look at special needs families and pity them.  I hope I have given some insight for families just starting down  this road.  I also want anyone wondering if an abortion would have solved this, had we known.  The answer is no.  The blessings outweigh anything you can imagine.  As we Marched for Life in Washington D.C. last week, we marched for Kate.  We marched for the end of the abomination of abortion.  I used to think I couldn't handle a special needs child and now I see that these children, as all children, are truly gifts from our Heavenly Father.

Comments

Popular posts from this blog

Finding Peace with Charlie Kirk

It sure has been a rough time this year.  I really thought this year was going to be spectacular and finally peace among us.  How naive I still am.  Or is it the Pollyanna in me. Seeing Charlie Kirk get assassinated shook me and many others to the core.  I loved Charlie and what he stood for and yet!  I am so surprised at exactly how many people he touched.  Behind the scenes he was such a testament of who we should be.  He was genuinely GOOD!  How many times from thousands of friends did they say how he checked in on them and the encouragement he shared with them.   Now Revivals are breaking out and the younger generation is praising God in millions.  Does it make you think about yourself and how you make a difference in people’s lives?  Do you realize that your kindness and friendship is so much more powerful than you think?   When we want to mourn and hide away, we are being called to action.  Action with Praise and Glo...

Don't Judge a Special Needs Family

Have you ever been misunderstood? Have you ever tried to do the right thing and have a whole bunch of wicked come hurling at you? What did you do? Did you start to endlessly explain your motives so it could be twisted by the few people that dislike you? Or did you stay silent? Staying silent is not my strong point, thus the blog.;) When I became pregnant with Looly (Kate), I noticed some big changes within myself. I had to fight to keep her alive because of a difficult pregnancy. Then at the end of my pregnancy I had to fight to keep us both alive. Then we were told Looly had Down Syndrome. At that time, we were grateful to God that she was alive and later we were thanking God that her heart was healthy and there was no neurological damage. She just has Down Syndrome. Just Down Syndrome. Say those words...just Down Syndrome. That is what I do, I simplify difficult things, then reflect and think I'm crazy. I was connected to this child at conception. I begged God to let me car...

Mary My Mother

I knew a woman who got pregnant.  The "Father" refused to marry her.  She had a son...his son.  He married another and left his Catholic Faith.  He became "born again".  He was baptized again.  He pounded on his bible and on his family.  He said Catholics aren't Christian.  They worship idols.  He attacked and attacked.  He became obsessed to the point that his religion was based on hatred.  Hatred that he could NOT convince even the weakest Catholic to switch sides.  He sinned.  Some of the biggest sins.  He had no where to turn.  He had all the sacraments of the Holy Catholic Church.  He could walk into a confessional at any time.  But pride, ego, ego, pride, stop him.   The worst part of this prideful story is the undermining of the mother of his son.  She brought him up Catholic. This story is probably a very common story.  It interests me because when we are at a crossroads, what d...