Skip to main content

Down Syndrome Wonders...

Lately it has been a roller coaster within myself about Looly (Kate), our youngest daughter who has Down Syndrome.  As her parent I worry if I'm doing enough.  She still doesn't feed herself with a spoon or fork.  She is beginning to listen when we say no.  She has learned how to undress herself down to her onesie, even if we need her dressed!  If it is just a matter of when, I can handle that, but if it's a matter of "we should have", that's my worry.

I reflect on how much I wanted to hold onto my pregnancy with her.  Making many deals with God along the way.  From very early in my pregnancy I had whispers that this child may have Down Syndrome.  I had started writing a story, in the story was a big family who had a child with Downs Syndrome and the Mom was pregnant and wondering if the child she was carrying would have Down Syndrome.  Now why would I write this???  Why was this story so important to write?  Now I know why.  I didn't get any genetic testing done because it wouldn't matter to us if she had Down Syndrome.  Now fast forward a couple of years and I see very clearly that God had chosen our family to walk through this and strengthen our faith.

I was grateful.  Overwhelmingly grateful.  While some people were angry that I would choose so many children and to continue into my 40's to have babies, others felt sad for us.  I felt like I had won some kind of secret lottery.  That God, in all his infinite wisdom thought we were good enough parents to handle a special needs child.  What a gift.  Now we try to live up to this challenge.  I definitely lack grace in this sometimes.  My frustrations have brought me many times to my knees begging for an answer to something so simple as having Looly listen to my instructions, "don't throw your sippy cup, place it on the table."

Having her talk is a big worry.  I'm ready to start a program with her to help her communicate.  I long for the day when I can hear what she is thinking, wanting, scheming, joking!  My husband BJ is much more relaxed with her.  He takes her swimming and is putting up a safety area for us to play in the yard.  Always striving to give her more freedom, within safe limits.

So this blog is just an outlet to say, pray for all families with special needs children.  Pray that they continue to strive for what is best and for the help they need along the way!  Thank you.






Comments

Popular posts from this blog

Don't Judge a Special Needs Family

Have you ever been misunderstood? Have you ever tried to do the right thing and have a whole bunch of wicked come hurling at you? What did you do? Did you start to endlessly explain your motives so it could be twisted by the few people that dislike you? Or did you stay silent? Staying silent is not my strong point, thus the blog.;) When I became pregnant with Looly (Kate), I noticed some big changes within myself. I had to fight to keep her alive because of a difficult pregnancy. Then at the end of my pregnancy I had to fight to keep us both alive. Then we were told Looly had Down Syndrome. At that time, we were grateful to God that she was alive and later we were thanking God that her heart was healthy and there was no neurological damage. She just has Down Syndrome. Just Down Syndrome. Say those words...just Down Syndrome. That is what I do, I simplify difficult things, then reflect and think I'm crazy. I was connected to this child at conception. I begged God to let me car...

Finding Peace with Charlie Kirk

It sure has been a rough time this year.  I really thought this year was going to be spectacular and finally peace among us.  How naive I still am.  Or is it the Pollyanna in me. Seeing Charlie Kirk get assassinated shook me and many others to the core.  I loved Charlie and what he stood for and yet!  I am so surprised at exactly how many people he touched.  Behind the scenes he was such a testament of who we should be.  He was genuinely GOOD!  How many times from thousands of friends did they say how he checked in on them and the encouragement he shared with them.   Now Revivals are breaking out and the younger generation is praising God in millions.  Does it make you think about yourself and how you make a difference in people’s lives?  Do you realize that your kindness and friendship is so much more powerful than you think?   When we want to mourn and hide away, we are being called to action.  Action with Praise and Glo...

Happy New Year! Life is Good!

Praising God for all His blessings in our lives this past year and asking Him for His graces in 2018! This past year was busy and very telling.  Kate getting into her special school and thriving!  We can't wait to see what 2018 brings.  This school is better than we imagined and we are so grateful for every single person at this school. This New Year is the year for true forgiveness.  To forgive.  Forgiveness is not a feeling, it’s an action.  I find myself drawn to love and forgiveness more this New Year than ever.  To be free of condemnation.  To support BJ in our new business endeavors!  We have such high hopes and the future is bright with promise.  God has this!  He always has this! So Happy New Year everyone and may God keep and bless you in 2018 and always!