I like to wake up before Looly (Kate). I like to pray and read a positive quote or two while drinking a fresh cup of coffee. When I hear Looly begin to stir, I get her a fresh cup of milk. She can successfully drink from the straw. I sing good morning to her every morning that I get her out of the crib. My daughters do the same if they get her in the morning. I change her diaper and she drinks some milk. She then takes off running in the livingroom. Back and forth to get her energy out. Then it is breakfast time.
We start our day either chauffeuring someone to class or if we are blessed to stay home, we start our schooling. As the girls do their work, Looly is learning to use a pencil and crayons. Just to see her make a mark on paper gives us joy. Her vocabulary is very limited, so communication is difficult somewhat. She knows some sign language but stubbornly refuses to use it much. That is the world of Down Syndrome no one speaks of, stubborn.
I watch as each child in the family interacts with Looly. She sits with me for snuggles, kisses and songs. And even though she can't talk much, sometimes, she sings sweetly to me. My husband BJ can't wait to get home from work to see his Looly and get some time of kisses and hugs. She likes to play the, hard to get, dance. She loves the chase! Our twenty year old son swoops her up in the air and I have to look away! She squeals with giggles and they have their conversation and again, hugs and kisses. Then there is Maria, second mommy, who melts every time she lays eyes on Looly. They are very attached and love to spend time together. Maria is a freshman in College and welcomes the time with Looly. Ireland is a very good friend to Looly. She spends time with her throughout the day, singing, playing, hugging and kissing this precious child, she brings such laughter and joy to her sister! Trinity is the first child I have ever seen that knows when I need a break, without me saying a word. She will jump in to play, change a diaper, feed a meal and also the total hugging and kissing our Looly.
That is Looly's world, her immediate family. In the Looly world, we are it! Grandparents, Aunts,
Uncles and cousins are not involved. Down Syndrome is scary to them. Every day I pray that they accept her one day so she knows the love my other children knew. They are missing so much joy and love. Our lives have taken a turn, but onto the right road of love and understanding. Looly turns three at the end of the month. Time has gone by so fast, and we are thanking God for all our blessings and praying that health and well being continues in our Looly world.
We start our day either chauffeuring someone to class or if we are blessed to stay home, we start our schooling. As the girls do their work, Looly is learning to use a pencil and crayons. Just to see her make a mark on paper gives us joy. Her vocabulary is very limited, so communication is difficult somewhat. She knows some sign language but stubbornly refuses to use it much. That is the world of Down Syndrome no one speaks of, stubborn.
I watch as each child in the family interacts with Looly. She sits with me for snuggles, kisses and songs. And even though she can't talk much, sometimes, she sings sweetly to me. My husband BJ can't wait to get home from work to see his Looly and get some time of kisses and hugs. She likes to play the, hard to get, dance. She loves the chase! Our twenty year old son swoops her up in the air and I have to look away! She squeals with giggles and they have their conversation and again, hugs and kisses. Then there is Maria, second mommy, who melts every time she lays eyes on Looly. They are very attached and love to spend time together. Maria is a freshman in College and welcomes the time with Looly. Ireland is a very good friend to Looly. She spends time with her throughout the day, singing, playing, hugging and kissing this precious child, she brings such laughter and joy to her sister! Trinity is the first child I have ever seen that knows when I need a break, without me saying a word. She will jump in to play, change a diaper, feed a meal and also the total hugging and kissing our Looly.
That is Looly's world, her immediate family. In the Looly world, we are it! Grandparents, Aunts,
Uncles and cousins are not involved. Down Syndrome is scary to them. Every day I pray that they accept her one day so she knows the love my other children knew. They are missing so much joy and love. Our lives have taken a turn, but onto the right road of love and understanding. Looly turns three at the end of the month. Time has gone by so fast, and we are thanking God for all our blessings and praying that health and well being continues in our Looly world.
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